Please feel free to contact us at:

info@ehlers-danlossyndromecanada.org


Our Vision


  • Strives to be a bridge between patients and care providers; offering informative, purposeful medical resources for patients and the medical community
  • Provides a confidential supportive environment to develop lasting friendships within the community
  • Unites EDSers by providing peer to peer, online, regional community support groups and social events
  • Works to cultivate change for the EDS community coast to coast
  •  Builds a network to empower individuals in the various regions across Canada
  •  Engages policy makers to affect change for the optimal quality health care for Canadians with EDS

Mission Statement



Ehlers-Danlos Syndrome Canada provides knowledge, advocacy and support to individuals and their families living with Ehlers-Danlos Syndrome.

About Ehlers-Danlos Syndrome Canada